Yup! After 6 days in the hospital, Saturday Tim got back to the apt & the chair’s rocking! YEAH!! In fact, if his counts hold, tomorrow they will declare him officially engrafted.
Monthly Archives: March 2010
T+12: Honorably discharged!
Yup! After 6 days in the hospital, Saturday Tim got back to the apt & the chair’s rocking! YEAH!! In fact, if his counts hold, tomorrow they will declare him officially engrafted.
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Should I stay or should I go? T+9
Hey everyone. On paper, it looks like I’m improving. My blood counts are beginning to rise. But in actuality, I kind of feel the same. Although my throat is getting a little better. They now have taken me off of all the iv’s except hydration. I’m especially glad to be off morphine. It never really did help my throat pain, and didn’t really have much fun side effects. I’m supposed to begin trying to eat and drink a little. Yesterday I had about 3 sips of Gatorade and couldn’t keep it down. Today I had 3 sips of ensure and 4 sips of a fruit juice and so far have stayed down which is good.
I had mixed feelings about coming into the hospital and I have mixed feelings about leaving. I don’t know, I kind of feel like Brett Favre trying to decide to play another year of football or not. I think it’s what morphine does to your mind… maybe he’s on morphine too. I got my daily laps in today, 2x by .5 mile. Thanks again for all your prayers and encouragement!
still LivingSTRONG!
Tim
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T+8: Engrafting has begun!
Dr: “How are you today, Tim? “
Tim: “Oh-h-h, I’m OK.”
PA: “He’s doing great! He’s right on track.”
Dr: “Well, you look good. Your counts are coming up; WBC are 120 today. You’re beginning to engraft.” (emphasis mine!)
Today’s blood counts:
–White Blood Cells (WBC): 120 (normal = 4,300 to 10,000)
–Neutrophils: 0 (normal = 1,800 to 7,000)
Today’s dr instructions:
–Stop IV pain meds; use orally as needed
–Let IV nutrition run out & then stop to stimulate appetite
–Try several swallows of Gatorade today.
Thank you for your love, care, and prayer!
God is good all the time; it’s a matter of trust.
Phyllis
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Day T+7
Tim’s still in the hosp and may be for another week or so. His insides took quite a hit from the radiation and chemo regimen, and until his cells engraft, he has no white blood cells to begin the healing process. At this point, nothing is going down his throat. He’s receiving hydration, nutrition, & meds all thru IV. All his saliva & coughed up throat gunk (note my use of medical terms) is suctioned from his mouth w/ his new buddy: a hand-held suction device.
He can & does get up & walk. 10 laps around the halls = 1 mile. He’s doing that daily (several @ a time), but little else. Mainly he is in bed concentrating on healing. You saw that Benjy shaved his head & beard Sunday; yesterday Tim washed the rest of it out in the shower. Thankfully Tim can grow hair; it, too, will be back!
Tim is in the BEST place receiving the BEST care. The 8NE floor of UWMC is dedicated alone to transplant patient care. The med staff is highly qualified and wonderful in their care. The patients are cared for as needed, but mainly left alone to heal–in peace.
I know you pray and I want to keep you informed. Thank you. God’s evident love and His WORD continue to uphold and sustain us.
By day the LORD pours out His steadfast love upon me;
at night His song is with me. -Ps 42:8
God is good all the time; it’s a matter of trust.
Phyllis
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Guest Post: from my brother Benjy!
I considered it a privilege to fly up for a weekend visit and have certainly enjoyed experiencing the ups and downs that are normal for Tim right now. I was then offered the opportunity to write to Tim’s fans and knew that I had to take advantage of that. This is Tim’s brother Benjy and I thank you all for your prayers, posts, and care for Tim through this process.
In Nehemiah we see where God used Nehemiah to lead the people in the rebuilding of the walls of Jerusalem. Through this process there was intense opposition from other people in the land and disunity within Jerusalem. Despite this opposition Nehemiah and people rebuilt the walls. Nehemiah overcame these threats by taking wise defensive measures, by personal example, and by his obvious courage that he had because he trusted in God’s provision and faithfully followed His instructions. Nehemiah did what God had put in his heart (2:12, 7:5) and found that the joy of the Lord was his strength (8:10). Whenever the people began to fall or question what they were doing, Nehemiah would have Ezra read to them the Law to remind them to focus on what is Truth.
Tim’s body is going through a “rebuilding” phase right now. There is a lot of opposition to this construction process, but God is using a team of “builders” to help Tim complete this project. Let me get into a few specifics from the past few days. The weather has remained very pleasant so Saturday and Sunday I walked with Tim to and from the clinic for his blood draws and checkups. Both days Tim’s blood pressure was high and heart rate low which indicates dehydration. Tim has continued to fight against the many things that are attacking his body, but his throat has gotten increasingly painful. His throat is extremely swollen and filled with sores so it is difficult to eat or drink anything; though, he somehow manages to put down the 10-12 “horse” pill that he has to take every day.
Well, at the clinic the wonderful team of nurses and doctors went to work to hydrate Tim and give him some stronger pain medication for his throat. He really was on the verge of being sent to the hospital, but you know Tim is a fighter. We all appreciated the “boost” that these fluids and medicine provided, but it really just showed how tough this dose of chemo and radiation has been on Tim’s body. While at clinic, multiple times the nurse and PA referred to the intense regiment that Tim received and how surprised they were at how hard Tim was fighting back.
We have always known the danger of Tim being exposed to any sickness or infection because, as his blood counts confirmed, his immune system is zero. This means that Tim has to monitor his temperature so he can know right away of any potential infection. Well, Sunday night about 9:30 his temperature was 100.4. He knew that this was potentially dangerous so we packed up and headed to the hospital. Tim had hoped to avoid this, but he knew that he had to go in. One nice perk about being in the hospital is that he is receiving his daily pills and fluids through IV instead of through his sore throat. The staff got him all set up and they were able to get his temperature down within a few hours. I stayed the night with Tim while my mom went back to the apartment for a much needed night of rest. Tim didn’t sleep well last night, but I think he will be able to settle down better as they figure out the best mix of meds and fluids to give Tim. We know that God has had Tim in the best places for care along the way and for the next few days the hospital will be that place. Just like Nehemiah had to take wise defensive measures, Tim has needed to make wise decision for his care and now we can continue to watch God use the team of builders to complete this project. Don’t forget, each of you is a part of this team because your encouragement plays a big part.
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Transplant + 2 days…
I don’t really feel like writing much right now, but I thought I’d give a quick update anyway. The big question whenever I go to the clinic is “is today the day I’m going to go to the hospital?”. Thankfully, today was not the day. I’ve had some pretty intense nausea times lately, and also got a bad case of the hives today, but I convinced the docs I was feeling well enough to stay out for now. My big thing right now is to force myself to exercise. The clinic is about ½ – ¾ of a mile up hill, and every day so far I’ve forced myself to walk to the clinic, even though there is a shuttle that comes every 10 minutes. I think the exercise is really helping me. That’s all for now…sorry, no picture today.
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They’re back!
Here’s a shot of the last of Tim’s cells going in: 6.4 million cells in 13 minutes! While it was not an easy day for Tim, his cells are back where they belong, & now it’ll just take awhile for them (Tim & his cells) to get reacquainted. Tim walked to clinic @ 7:45 this morning. He was dismissed @ 5:20 this evening and is now back @ the apartment sleeping. The medical staff continues being “impressed” & “amazed” at Tim’s spirit and physical condition. Certainly today he was LivingSTRONG: he played like a true Titan and/or a Bronco!
God is good all the time; it’s a matter of trust.
Phyllis
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T-1
Transplant minus 1 day
I was just about to call it a night, but thought I’d write a quick post to thank everybody for their continued support. I can tell you that every wall post, card, care package, etc. that I have received has all been perfect timing to lift my spirits. The Lord has definitely been good to me. Tomorrow is a day that I will experience that many of you may never experience in your lifetime. Tomorrow is my saving day where I am going to be rescued. As it stands, my blood counts are dropping fast, and there is no way that they could recover without the stem cell transplant I’m going to receive tomorrow. At 8:15am I have a blood draw, and then at 9:00am I go to infusion to receive some hydration, and then eventually receive my cells. It’s an exciting time, but it is also the beginning of a long road of recovery. They predict that it will take between 10-14 days before the cells begin grafting, and during that time it is not too pleasant. But I had a good self-motivating talk with myself on the way to the clinic the other day and I’m going to continue to FIGHT STRONG! I can tell you that Hodgkins picked the wrong person to rage a battle with, cause tomorrow is going to be it’s final cry in my life!
As my fellow Rotarian Francie wrote on my wall a while ago…“You make sure they remember forever…the night they played the Titans!”
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Much needed “rest” day
Tomorrow I’m looking forward to a much needed day of rest. After undergoing 8 straight days of not fun stuff, I’m ready for a little break. Actually, I still have to go to the clinic, but I won’t be having radiation or chemo.
This week was the first time that I’ve had radiation before, and I also hope that it’s the last. Twice a day for 4 days (8 total treatments) I was radiated from head to toe. It’s a very strange feeling. I stood in a room by myself in front of a huge machine. Then a buzzing noise began and all of a sudden the palms of my hands and my feet began to sweat. There isn’t any pain, but then my legs began to shake like my energy was being zapped straight out of me. Then I’d feel a strong urge to throw up, though I never did. I sucked on a peppermint candy to help prevent that. Once I was done with the peppermint candy (it was about the same amount of time to suck a peppermint candy until I was told to turn the other direction), then I was told to face the other direction, so I would get another peppermint candy and go through the same sensation.
Currently I’m not eating a whole lot, and I don’t go very far without having a trash can near by…just in case… I need to… throw…something away… real quick
Right now my breakfast contains about 10 pills, and my dinner about 7 pills, and during the day I’m hooked up to a portable IV pump which keeps me hydrated.
Today I received a strong dose of chemo, and then Monday I’ll be at the clinic for about 12-13 hours for another strong chemo day. Then on Wednesday is when I’m scheduled for my transplant. I’m told that my worst days will probably be after I get my cells back as that is when the radiation and chemo really take their effect. They’ve really got to find a better way to cure cancer than this. The one thing that got me through the radiation stage was when I was sitting in the waiting room a beautiful 3 or 4 year old girl with no hair skipped into the clinic happy and cheery with her mom as she was about to receive her daily dose of radiation. I told myself, if she can be happy and cheery before her radiation, then I better suck it up and quit feeling sorry for myself. My radiation days went much better after being inspired by a brave little girl!
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5 down…3 to go
“Today I’m stepping in for our sun-tanning, LivingSTRONG RockStar, and I’ll tell you what: Tim’s LivingSTRONG strength is showing. This transplant business is NOT for the weak of heart. We just retuned from his 5th TBI session; the first 6 are given with lung blocks. Tomorrow’s radiation will be full total body.He’s not the perkiest, but he’s OK! In fact, after a bit of a rough start to the day, I heard him drumming to Everlasting God in the car on our way to treatment! God bless you and yours! Your encouragement is carrying Tim. Stop by often & say “hey.” He checks his email & blog regularly. God is good all the time; it’s a matter of trust.”
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Sun-tanning
I’ve got about 5 minutes before I need to go, so this is going to be quick. I started my conditioning phase on Saturday. I received Palifermin on Saturday, Sunday, and Monday, and then today through Friday I go for full body radiation twice a day. The radiation is just like going to the beach and tanning… or so that’s what I’m going to think in my mind. It’s going to be nice and relaxing and I’m just going to sit there and soak in the rays.
The next 4 days schedule looks like this, 8am-Radiation at the hospital, then I drive back to the clinic for a blood draw and a clinic visit, then I drive back to the hospital for more radiation at 2pm. In between the radiation visits I’ll be on an IV for 4 hours so I’ll need to carry around a backpack which will hold a portable pump.
I think the hardest part this morning is waking up and getting going. My body knows something bad is going to happen, and so it’s wondering why I keep getting up to go for more.
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“Are you kidding me?”
Wow!
I have had a weekend full of unbelievable surprises and events! Thanks to everyone who played a part. First of all, Benjy and Susie and Annie and Riley and my dad all flew up to visit and spend my birthday with me. It was great fun to get to spend time with them! Also, my mailbox was flooded with over 50 birthday cards and packages, and my e-mail, facebook, and blog pages were filled with birthday wishes as well. Thank you all very much, it means so much to me to have the support and encouragement from all of you!
BUT, there was one special surprise that happened tonight which I’m still not even sure if it was real or if I was dreaming. I got a phone call from Coach Pete (head football coach at Boise State for those easterners who don’t follow football)! What an incredibly humble man. I was so honored to receive a call from him. His son, now 11, had a brain tumor and underwent a stem cell transplant, so he knows all about the whole process. He wanted to know all the details on where I was staying, and if I was going to receive my own cells or a donor’s cells etc. He said he can’t wait for me to get well so he can meet me in person and give me a tour of the football facilities. He also assured me that Boise State will be in a “good bowl” next year
I’m starting to hear bits and pieces on how some of you may have played a role in getting this to become a reality, and I am VERY GRATEFUL!!! I just wish I had a few more years of eligibility left. I’m not sure how a high school recruit could turn down an offer from such an incredible coach.
Now onto some medical news for the day. After several delays, we finally had my data review appointment today which outlined the schedule for the stem cell transplant. I have finally gotten the go-ahead to move forward. I am scheduled to begin the conditioning phase on Saturday, March 6. For 10 days I will be receiving high doses of chemo and radiation, and then March 17 is when the transplant date is set and is when I will receive my stem cells.
Thanks again to everyone for your support, encouragement, prayers, and making my 27th birthday a very special one!
LivingSTRONG!
Tim
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