
Shaved head!
Facebook post from April 9, 2009
Hello to all! I guess it’s been a while since I’ve posted, so this one might be long… sorry
To catch everybody up from my last treatment (#2 of 10), since I was on the steroids, I wasn’t able to sleep for the immediate 3 days after treatment. I felt alright, just couldn’t sleep. When they wore off, I got pretty exhausted for about 3 days where all I did was sit in my rocking chair and change from reclining to rocking, and once a day I made the big trip out to get the mail. Wednesday- Friday I felt well enough to work for 2 hours each day. After the 2 hours I was pretty exhausted, but it felt good to get out for a little bit. A couple other things happened last week. #1- I am losing my memory (hahaha, I know many of you are probably thinking that it’s always been that way and I’m just now figuring it out). This is a common side effect from chemo, “chemo-brain” as my fellow chemo friends call it. I’ve been noticing it quite a bit as I talk with people and I stutter quite a bit and can’t remember different words. I especially noticed it last Friday while I was at work. I had a remote Live-Meeting demo for a prospect in Utah. It was pretty bad, I couldn’t think on my feet, and I was barely able to put a whole thought together. The second thing that happened is that I have lost my taste. I first noticed it when I was at Quiznos, and I about returned my sub because it tasted so plain. Later in the day I had a Blimpie sub and I made sure they loaded it with dressings, and again I couldn’t taste any of it. That night my Grandma had me over for dinner, and when grandma’s food didn’t taste well, then I knew it was probably a problem with me, and not the food. The third thing that happened this last week was I shaved my head. My hair was starting to fall out in chunks, so I had my brother Benjy come over and shave it. The last time I shaved my head was when I was in 12 yr-old baseball all-stars. I had a very odd mis-shaped head back then, so I was pretty curious what I would look like now. Well, somehow between ages 12 and 26 my head has rounded out, and I think it looks pretty dang good! Now I’ll give you a summary of the last few days. Tuesday, my dad I flew in a small 4 passenger plane flown by a volunteer pilot from Angel Flight. Before we flew I was really not excited to go back up for another treatment. I was just starting to feel well, and was just really dreading getting pumped full of poison again. Well, I got on the plane anyway and had a great flight… well, kind of a great flight After about an hour in the sky I was starting to feel pretty light headed and was really wanting to fall asleep. We were at 16,000 feet, and we had oxygen in our noses because the cabin wasn’t pressurized. I decided to check my blood/oxygen level and it’s not supposed to get below 80. Mine was 67, the pilot checked his and he was at 92 as well as my dad was in the 90’s. Anyway, the pilot immediately dropped down to 10,000 feet and I went back to the mid 80’s. Good thing I didn’t fall asleep, I think I would have probably blacked out. That night I had a pretty massive head from the lack of oxygen to my brain, what’s a few more dead brain cells
The next morning I was still pretty anxious about going back to the clinic. So I sat in the rocking chair and the words of the song “Everlasting God” just kept playing over and over in my head. “Strength will rise as you wait upon the Lord!” This song comes from Isaiah 40:30-31 “Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles, they will run and not grow weary, they will walk and not be faint (or faint in the plane
). The Lord really calmed me after this time in the rocking chair and I was ready to go! When my dad and I got to the clinic they had to spend the first 2 hours trying to get my port unclogged. They finally put a solution (like draino) in and let it sit for over an hour and it finally opened up. My blood work came back very good, so the growth hormone shot worked. This time around they held back on one of the drugs called Bleomiacin, this one is particularly tough on my lungs. I’ve been having some recent breathing difficulties as well as a rapid heart rate (105 bpm resting), so they decided to hold back this week and I’m going to get another pulmonary test to see where my lungs are at. If the test comes back good, then they will continue the Bleomicacin. I also got acupuncture again this time. Today (Thursday) my dad and I flew back home in a very nice 6 passenger plane (w/ a pressurized cabin), I’ve felt well most the day, and now I am really starting to feel the exhaustion set in. Thank you to everyone for your prayers and encouragement notes! God is GOOD! Tim